Welcome to the c word

I rarely show the world what is going on inside it is just not my style. I hide pain and constantly worry about worrying other people and how they will feel about how I am feeling. I keep my problems to myself and sometimes even from my closest friends. Well not this time.

I have been on the c word roller-coaster (I'm calling it the c word to go easy on the faint hearted) for over three weeks now and have decided it is a good idea to write down what's happened, happening and going to happen then whoever wants to keep up to date can without being forced to hear about it through emails from me. Because you will all have days where you just can't or don't want to hear about this. I get that it’s ok.

I hope not but you also might meet people or know people who go through something similar and it might just help them in some way to know they are not alone and when they fall apart it is ok because who wouldn’t. When you read this please forgive grammar and spelling etc I have not slept for three days and sorry too if it is up and down that is pretty much how I am doing most days.

- Tuesday 23rd February 2010

Tuesday 6 July 2010

Tired flaky

I keep believing I can make plans then the day or evening comes when I need to go somewhere and meet someone and I am usually on the sofa asleep. So sorry to anyone I have flaked on, I am temporarily tired flaky but as my friends and I decided tired flaky is ok but flaky flaky is not.

Something else I have noticed is if I begin to show any signs of feeling at all sorry for myself regarding radiotherapy I find the occasional reaction to be 'well it could have been worse at least you didn't have chemo'. People have an inherent need to gloss it all over and take the weight out of suffering by seeing the sunny side instantly but this sometimes brushes aside what someone is feeling. I do it too and now I am so determined not to, it is like positivity tourettes.Yep I know I am lucky in a way but allow me a little time to grieve or express the shittiness of removing all normality from your life while you are travelling to hospital everyday in the heat (when you are not allowed in the sun or your skin will fall off) to lay tense and still while they beam radiation into your chest right next to your lungs making your skin sore and stealing all your energy. It could be a lot worse sure but it could be a lot better. Oh and I read macmillan yesterday in search for a moisturiser -

Second cancers

Radiotherapy can cause cancer and a small number of people will develop a second cancer because of the treatment they have had. However, the chance of a second cancer developing is so small that the risks of having radiotherapy are far out-weighed by the benefits. If you are concerned about your risk of developing a second cancer you should discuss your worries with your specialist.

Erm perhaps mention this one before hand, I mean it would be nice to know! Ok sure not much chance but I would at least like to be aware of it.

I went to see my friend run the race for life on Sunday. I didn't see it coming but I was only there 20 minutes before I was in tears, cunningly disguised under my straw hat and sunglasses. It was so overwhelming even Phil said he welled up in 5 minutes, you find yourself reading all the peoples messages to lost loved ones on their backs and right now it was too much. But I am still glad I went anyway.

Oh crap I gotta go I will be late otherwise. Hope everyone is well and happy.
Oh on a good note I am officially an Auntie as of yesterday to Matthew Bolland a healthy baby boy, I hope mum is resting and recovering well xxxx

No comments:

Post a Comment